MARKET INSIGHT
Aspiring corporations that increase the use of human data, and human data science will need a consent broker in the face of approaching ethical and regulatory boundaries.
MISSION
Grow a global consumer-inclusive human data economy, where corporations are compliant to emerging Fair Trade Data practices.
STRATEGY
Identity, property rights, and track and trace creating a platform where consumers, corporations, and countries can engage in the Fair Trade of data.
FOR CONSUMERS
Your data.
Your choice.
Your future.
A mobile Application available globally on Apple iOS and Android empowering consumers to ensure their data is protected. With the #My31 App consumers can claim a property interest on inherent human data, consent for privacy, authorize for permitted use, and elect for compensation if desired.
#My31 App
Empowering consumers to ensure their data is protected.
With the #My31 App consumers can claim a property interest on inherent human data, consent for privacy, authorize for permitted use, and elect for compensation if desired.
Create
Account
Claim
Data
Set
Choices
Manage
Ongoing
FOR CORPORATIONS
Your differentiation.
Your transformation.
Your future.
A consent and authorization management technology platform that enables existing research, academic, and commercial organizations to transition to Fair Trade Data practices where consumer preferences, and country/sovereign regulations can be respected at scale.
CONSENT AS A SERVICE
A consent and authorization management technology platform that enables existing research, academic, and commercial organizations to transition to emerging Fair Trade Data practices.
Communication
how effectively were the key principles of the contract/consent communicated. Were the techniques below used in display and capture with the data owner/creator/source.
- Identity is verified
- Language is accessible
- Visual aids are used
- Questions are addressed
- Feedback is enabled
Granularity
how effectively was granularity captured with respect to the dimensions below.
- Data subsets are clarified
- Duration of use is captured
- Purpose of use is captured
- Jurisdiction of use is captured
- Non 1st party choices are captured
Ongoing Management
were the concepts below imbedded and/or communicated in the contract display and consent capture process.
- Verified identity is linked
- Multiple consents can be viewed
- Consents can be updated
- Corporations can request renewals
- Consumer can preset consents
Standardized & Syndicated
is the supply chain actor, dataCurator, dataBroker or dataBuyer a part of a larger network of nodes, and are standards adhered to.
- Consumer has self-sovereign Unique ID
- Vocabulary/schema is standardized
- Changes are updated in real time
- Each actor has a node on supply chain
- Schema is backward compatible
INDUSTRY SaaS NODES
Individual blockchain nodes delivered as SaaS for industry-wide stakeholders to manage the consent and authorization of inherent human data in a standardized manner.
GLOBAL COMMENTARY
Key decision makers in government, and industry globally are increasingly foreshadowing a market correction where the ownership of inherent human data is clarified.
FOR COUNTRIES
Your citizens.
Your natural resource.
Your future.
A point of view that comprises of historic, market, economic, ethical, and policy research, coupled with thought leadership informing policy makers in local and federal governments on the opportunities and risks around inherent human data as a strategic natural resource.
POINTS OF VIEWS
Data informing local and federal governments on the opportunities and considerations of inherent human data as a strategic natural resource.
EXECUTION TEAM
"Here’s to the crazy ones, the misfits, the rebels, the troublemakers, the round pegs in the square holes… the ones who see things differently — they’re not fond of rules… You can quote them, disagree with them, glorify or vilify them, but the only thing you can’t do is ignore them because they change things… they push the human race forward, and while some may see them as the crazy ones, we see genius, because the ones who are crazy enough to think that they can change the world, are the ones who do."
— Steve Jobs, 1997
Richie Etwaru
Founder & Chief Executive Officer
Michael DePalma
Founder, President & Chief Operations Officer
Glenn Zimmerman
Chief Communications Officer
Kathleen Dooley
General Counsel
Matt Sinderbrand
Chief Product Officer
Sheli Gupta
President, EMEA Operations
Lexa Abrahamsen
Associated Founder: Visual Excellence
Dan Karlin
Industry Transformation Officer
Mark Czubachowski
VP Strategic Partnerships
Gisele Waters
Advisor
Jim MacLeod
Associated Founder: Brand Excellence
Gavin Heaton
PRESIDENT, APAC OPERATIONS
Richard Adams
Liaison, Industry Transformation, European Operations
Denise Silber
Digital Health Liaison, European Operations
Ian Gilmore
DIRECTOR OF MARKETING AND COMMUNICATION TECHNOLOGIES
Ed Godber
Liaison, Trust & Value, European Operations
Sameer Sood
RESEARCH SCHOLAR
Anish Shindore
Press and Media Relations Advisor, Europe
ADVISORY TEAM
"The most important ingredient we put into any relationship is not what we say or what we do, but what we are. And if our words and our actions come from superficial human relations techniques (the Personality Ethic) rather than from our own inner core (the Character Ethic), others will sense that duplicity. We simply won't be able to create and sustain the foundation necessary for effective interdependence."
- Stephen R. Covey, 1932
Larry Smarr
SENIOR ADVISOR
Ray Wang
SENIOR ADVISOR
Rita McGrath
SENIOR ADVISOR
Craig Lipset
SENIOR ADVISOR
Amir Kalali
Advisor
Angela Radcliffe
Advisor
George Mathew
Advisor
Marla Gottschalk
Advisor
Lee McKnight
ADVISOR
Paul Simms
Advisor
Milind Kamkolkar
Advisor
Tracey Zimmerman
Advisor
SUPPLY CHAIN PARTNERS
The underlying technology that we use to create platforms and products matter. At Hu-manity.co we have three principles on selecting technology. Our technology partners must be API first, they must lead their category with innovation spend, and they must have versions that can run on a broad array of infrastructure configurations to accommodate our diverse customers environments.
CORPORATE SUPPORT
We support the 31st Human Right.
Watch a video of our Founder and Chief Executive Officer Richie Etwaru interviewed on The 31st Human Right at the United Nations Celebration of the 70th Anniversary of The Declaration Human Rights hosted by The People Centered Internet and Constellation Research in Palo Alto California on December 10th 2018.
Watch video
MAINSTREAM COVERAGE
"The prize for pharma is the acquisition of a much richer stream of data, and the chance to build an active relationship with the patients who supply it, eliminating many of the industry’s concerns about inadvertently falling foul of privacy laws."
-Financial Times, 2019
How patients can turn their medical data into money
The acquisition brings together Hu-manity.co’s blockchain-backed consent and authorization managem...
Who owns your medical data? Most likely not you.
Do you think you own your own medical data? Your hospital and doctor...
If Your Medical Information Becomes A Moneymaker, Could You Get A Cut?
Hospitals and health plans are increasingly using the huge amount...
Digital Health Heavyweight John Nosta Weighs In On Data As Property on Forbes.com
Forbes.com - President at NostaLab.com, Faculty at Singularity University, and Goole Health Advisory Board Member covers the topic of inherent hum...
BUSINESS COVERAGE
“The sale of your data isn’t explicitly described in your agreement with your doctor, so from their point of view, there’s nothing for you to object to,” explains Richie Etwaru, the founder and CEO of Hu-manity.co, one of a number of emerging startups that aim to help consumers control and even sell their own health data. “But to make it worse, anonymity is increasingly not guaranteed.”
-FastCompany, 2019
BLOCKCHAIN Exercise your 31st Human Right, from your couch, with Blockchain solution
Just as indignities common in human-subjects research led to the articulation of ethical principles in the Belmont Report 40 years ago, contemporary concerns about…
Who Should Own Your Health Data?
How should America manage personal health data? Look to Estonia, says Eric Topol, founder and director of the...
Apple CEO Tim Cook's privacy suggestions don't go far enough: Constellation Research’s Ray Wang
Apple CEO Tim Cook's privacy suggestions don't go far enough...
What you don’t know about your health data will make you sick
You can’t opt out of a shadowy system that’s hungry to know everything about your health—and without...
TECHNOLOGY COVERAGE
"Hu-manity wants to change the way we share data by giving people legal ownership with contractual enforcement handled on the blockchain. The first foray will be with medical data, and today the company debuted the #My31 app in Google Play and the Apple App Store."
-TechCrunch, 2018
Hu-manity Taps into Blockchain Technology to Create Data Marketplace
The beautiful thing about data and information is that it is wildly available. The sad thing is that a majority of us don't know who is using our private information…
Hu-manity Interview, Talking Digital Life And Rights, w/ Technology News!
Inherent human data is bought, sold, and used in a global human data marketplace without being classified...
PatientSphere uses AI and blockchain to personalize treatment plans
Artificial intelligence (AI) can — and already has — improved the health outcomes of patients around the globe. Google earlier this month achieved 99 perce.…
Hu-manity launches app giving consumers legal control over medical data
Hu-manity wants to change the way we share data by giving people legal ownership with contractual enforcement handled on the blockchain. The first...
HEALTHCARE COVERAGE
The app, My31, does not store any personal or medical data, but simply offers a record of a user’s property ownership and data-sharing preferences. The data itself will remain where it is currently stored, such as in electronic medical records or in research databases.
-FierceBiotech, 2018
Hu-manity.co eyes next-gen human rights: 'Data will be the currency of the future
Change is coming to the way government and healthcare providers treat personal medical data. In early January 2019, legislators in Oregon introduced Senate Bill…
A Belmont Report for Health Data
Just as indignities common in human-subjects research led to the articulation of ethical principles in the Belmont Report 40 years ago, contemporary concerns about…
What Oregon’s Move to Redefine Data Privacy Means for PHI
Change is coming to the way government and healthcare providers treat personal medical data. In early January 2019, legislators in Oregon introduced Senate Bill…
RWE: The Missing Link
Pharma’s investment in real-world evidence shows no sign of drying up. “Very few pharma companies today are not investing in RWE initiatives, especially if they…
MISCELLANEOUS COVERAGE
"According to co-founder Michael DePalma, Hu-manity.co was founded on the belief that people should own their data, particularly their medical data, as personal property. “People feel that information about their health is most personal of all,” he added. “It is consistently ranked as the information people feel is most sensitive. So in that sense, we’re all involved in healthcare and privacy issues.”
-Washington Examiner, 2019
Hu-manity.co helps people control — and monetize — their own info
The acquisition brings together Hu-manity.co’s blockchain-backed consent and authorization managem...
Blockchain gets a boost in the business world – but many remain dubious
Decentralised blockchains could completely alter the landscape of trust in business. The technology is slowly gaining momentum, but many people rema...
Companies are Selling Your Medical Info. So Why Shouldn’t You Claim A Share?
The selling of medical records is big business. According to some estimates, the sale of patients’ information is a $67 billion industry, of which the...
How Personal Data Ownership Can Solve A Privacy Problem
In any industrialized society, including the United States, one of the things that we take for granted is our common agreement about property rights...
PRESS RELEASES
“The track and trace of consent and authorization model that Hu-manity.co has brought to market has been what is missing in healthcare data from the inception. The simple idea that we should put the consumer (the patient) into the center of the healthcare data supply chain with ownership rights literally at their fingertips is both powerful, and timely.”
Matt Sinderbrand, Chief Product Officer, Hu-manity.co, 2019
Quantified Self Pioneer Larry Smarr Joins Hu-manity.co as Senior Advisor
The acquisition brings together Hu-manity.co’s blockchain-backed consent and authorization managem...
Hu-manity.co Acquires Betterpath Health Empowering Patients with Access to Healthcare’s Dark Data
The acquisition brings together Hu-manity.co’s blockchain-backed consent and authorization managem...
Patient Data Ownership and Data Property Rights Emerge as a Theme at Leading Pharma Executive Event
Multiple healthcare professionals discuss data ownership at a leading pharmaceutical event...
Hu-manity.co Announces Data-Focused Magna Carta as a Guide for Corporations to Be on the Right Side of History
CEO to discuss during live event on the same stage as founders of the internet and representatives fr...
TransPerfect Donates Services to Support Hu-manity.co’s Efforts to Establish 31st Human Right
Company Globalizes Messaging About Hu-manity.co’s Work to Secure Personal Data Property Ownership f...
PulsePoint and Hu-manity.co Partner on Consumer Data Ownership Movement for Healthcare Advertising
Partnership advances new open standard for data ownership NEW YORK, NEW YORK – Oct 31...
eyeforpharma Chair to Join Hu-manity.co Advisory Board
Paul Simms to help drive pharma’s adoption of the #My31 Movement to make personal data personal property. PRINCETON, NEW JERSEY...
Hu-manity.co Taps Pfizer Executive to be Pharma’s First Industry Transformation Officer
Pharma Insider Dan Karlin to activate the win-win of personal data property ownership for the Pharmaceutical Industry Princeton, New…
WHITE PAPERS
Our data is becoming more valuable every day, and we are seeing the just beginning. From our medical records being used for pharmaceutical research to our travel data being used to plan ideal vacations, the data that we create is powering the digital economy. And it’s time the sources of that valuable data — ordinary people — shared in the profits.
ON STAGE & ON SCREEN
See the Hu-manity.co team on stage and on screen across the world. We have presented the concepts of the 31st Human Right, Fair Trade Data, and Consent as a Service to over 50,000 individuals at over two dozen events globally.
Audiences include industry, policy makers, consumers, and academia.
LEARN MORE ABOUT HUMAN DATA
Corporations are arriving at the vivid realization that deepening consumer engagement at scale will cross over dark ethical and regulatory boundaries in the eyes of the public and policy makers globally.
The absence of a direct and appropriately consented relationship with consumers when coupled with further use of data and improvements in algorithms will trigger the Cambridge Analytica of every industry.
The first step of the process is education on the problem, the risk and opportunities, and various solutions.
Geospatial Data
Media Consumption Habits
Consumer Behavior
Electronic Medical History
INHERENT DATA
Inherent human data is not just our browser & social media data. It goes way beyond Facebook.
Inherent human datasets also includes our geospatial data, driver and vehicle history, consumer spending habits, medical history, travel, dining, and recreational habits.One individual’s electronic medical history can be sold for hundreds of dollars to multiple buyers, in different markets across the world multiple times per year.
The Difference Between Data Privacy, Data Access and Data Property Ownership
In the debate over how to secure everyone's data, there is constant...
Interview Michael DePalma/Hu-Manity - Digital Health Live Studio
In this high-energy video, Richie Etwaru, Founder and CEO of Hu-mani...
A Title of Ownership for Your Data (explained)
You have a title for car, your house or even your boat; so why not your dat...
What Hu-manity Can Give Humanity
"I think we all want to leave this planet showing that we put a mark somew...
HIGHLIGHT REEL
Hu-manity.co Demos Live to 500+ Pharma Executives
Richie Etwaru, Founder and CEO of Hu-manity.co, explains how data property ownership will benefit all sides of the pharmaceutical and healthcare industries. At the CNS Summit in Boca Raton, Florida Hu-manity.co spoke in front of a live audience with executives from Pfizer, Novartis, Johnson & Johnson, Merck, Roche, Takeda, Otsuka and more.
Watch video
LEARN EVEN MORE ABOUT HUMAN DATA
Reaching a Critical Mass in the #My31 Movement
Once enough people sign up and claim their 31st Human Right, we will be abl...
What the #My31 Movement Stands For
The idea for the #My31 Movement began as a realization by the founde...
We are Hu-manity.co | #My31
Hu-manity.co is the world’s first and only organization developing human...
Why the 31st Human Right
This short animation explains the history of 30 Human Rights the UN...
Why Claim Your 31st Human Right?
In this video the founder, President and Chief Operating Officer...
The Data Market is Growing Exponentially
Right now the data market is estimated to be worth somewhere between $15...
Using Your Data to Control Your Future
A quote from Hu-manity.co Advisory Board member Tracey Zimmerman...
It's Time for 23andMe to Meet 31andMe
The world should be outraged by the 23andMe announced partnership wi...
How Change Happens to Make Your Data Your Property
The idea of owning your data as property and then being able to...
Data Comes From People #My31
In this video, Michael DePalma (Founder, President and COO of Hu...