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© 2019, Hu-manity.co

MARKET INSIGHT

Aspiring corporations that increase the use of human data, and human data science will need a consent broker in the face of approaching ethical and regulatory boundaries.

MISSION

Grow a global consumer-inclusive human data economy, where corporations are compliant to emerging Fair Trade Data practices.

STRATEGY

Identity, property rights, and track and trace creating a platform where consumers, corporations, and countries can engage in the Fair Trade of data.

FOR CONSUMERS

Your data.
Your choice.
Your future.

A mobile Application available globally on Apple iOS and Android empowering consumers to ensure their data is protected. With the #My31 App consumers can claim a property interest on inherent human data, consent for privacy, authorize for permitted use, and elect for compensation if desired.

#My31 App

Empowering consumers to ensure their data is protected.

With the #My31 App consumers can claim a property interest on inherent human data, consent for privacy, authorize for permitted use, and elect for compensation if desired.

Create
Account

Claim
Data

Set
Choices

Manage
Ongoing

FOR CORPORATIONS

Your differentiation.
Your transformation.
Your future.

A consent and authorization management technology platform that enables existing research, academic, and commercial organizations to transition to Fair Trade Data practices where consumer preferences, and country/sovereign regulations can be respected at scale.

CONSENT AS A SERVICE

A consent and authorization management technology platform that enables existing research, academic, and commercial organizations to transition to emerging Fair Trade Data practices.

Communication

Communication

how effectively were the key principles of the contract/consent communicated. Were the techniques below used in display and capture with the data owner/creator/source.

  1. Readability
  2. Rich Media
  3. Interactive
  4. Real time feedback and/or summary
  5. 5. Questions and concerns addressable
Granularity

Granularity

how effectively was granularity captured with respect to the dimensions below.

  1. Single UniqueID for each consumer
  2. Standard vocabulary and/or schema
  3. Real time syndication of changes
  4. Node for each supply chain actor types
  5. Backward compatibility of schema and nodes
Management

Management

were the concepts below imbedded and/or communicated in the contract display and consent capture process.

  1. Linked to verified consumer identity
  2. Ability for consumer to see all in one place
  3. Ability for consumer to change
  4. Ability for Corporation to request renewal
  5. Ability for consumer to have presets
Standardization & Syndication

Standardization & Syndication

is the supply chain actor, dataCurator, dataBroker or dataBuyer a part of a larger network of nodes, and are standards adhered to.

  1. Single UniqueID for each consumer
  2. Standard vocabulary and/or schema
  3. Real time syndication of changes
  4. Node for each supply chain actor types
  5. Backward compatibility of schema and nodes

INDUSTRY SaaS NODES

Individual blockchain nodes delivered as SaaS for industry-wide stakeholders to manage the consent and authorization of inherent human data in a standardized manner.

GLOBAL COMMENTARY

Key decision makers in government, and industry globally are increasingly foreshadowing a market correction where the ownership of inherent human data is clarified.

FOR COUNTRIES

Your citizens.
Your natural resource.
Your future.

A point of view that comprises of historic, market, economic, ethical, and policy research, coupled with thought leadership informing policy makers in local and federal governments on the opportunities and risks around inherent human data as a strategic natural resource.

POINTS OF VIEWS

Data informing local and federal governments on the opportunities and considerations of inherent human data as a strategic natural resource.

EXECUTION TEAM

"Here’s to the crazy ones, the misfits, the rebels, the troublemakers, the round pegs in the square holes… the ones who see things differently — they’re not fond of rules… You can quote them, disagree with them, glorify or vilify them, but the only thing you can’t do is ignore them because they change things… they push the human race forward, and while some may see them as the crazy ones, we see genius, because the ones who are crazy enough to think that they can change the world, are the ones who do."

— Steve Jobs, 1997

Richie Etwaru

Richie Etwaru

Founder & Chief Executive Officer

Michael DePalma

Michael DePalma

Founder, President & Chief Operations Officer

Glenn Zimmerman

Glenn Zimmerman

Chief Communications Officer

Kathleen Dooley

Kathleen Dooley

General Counsel

Matt Sinderbrand

Matt Sinderbrand

Chief Product Officer

Sheli Gupta

Sheli Gupta

President, EMEA Operations

Lexa Abrahamsen

Lexa Abrahamsen

Associated Founder: Visual Excellence

Dan Karlin

Dan Karlin

Industry Transformation Officer

David Shefter

David Shefter

Capitalization Advisor

Mark Czubachowski

Mark Czubachowski

VP Strategic Partnerships

Jim MacLeod

Jim MacLeod

Associated Founder: Brand Excellence

Gavin Heaton

Gavin Heaton

PRESIDENT, APAC OPERATIONS

Ian Gilmore

Ian Gilmore

DIRECTOR OF MARKETING AND COMMUNICATION TECHNOLOGIES

Ed Godber

Ed Godber

Liaison, Trust & Value, European Operations

Richard Adams

Richard Adams

Liaison, Industry Transformation, European Operations

Denise Silber

Denise Silber

Digital Health Liaison, European Operations

Larry Smar

Larry Smar

SENIOR ADVISOR

Ray Wang

Ray Wang

SENIOR ADVISOR

Rita McGrath

Rita McGrath

SENIOR ADVISOR

Craig Lipset

Craig Lipset

SENIOR ADVISOR

ETHICS ADVISORY

"The most important ingredient we put into any relationship is not what we say or what we do, but what we are. And if our words and our actions come from superficial human relations techniques (the Personality Ethic) rather than from our own inner core (the Character Ethic), others will sense that duplicity. We simply won't be able to create and sustain the foundation necessary for effective interdependence."

- Stephen R. Covey, 1932

Gisele Waters

Gisele Waters

Advisor

Dr. David Bray

Dr. David Bray

ADVISOR

Amir Kalali

Amir Kalali

Advisor

Angela Radcliffe

Angela Radcliffe

Advisor, Strategic Programs

George Mathew

George Mathew

Advisor

Marla Gottschalk

Marla Gottschalk

Advisor

Corina DuBois

Corina DuBois

FELLOW

Marina Polachek

Marina Polachek

RESEARCH SCHOLAR

POLICY ADVISORY

"Where an excess of power prevails, property of no sort is duly respected. No man is safe in his opinions, his person, his faculties, or his possessions."

- James Madison, 1789

Lee McKnight

Lee McKnight

ADVISOR

Derry Goberdhansingh

Derry Goberdhansingh

Fellow

Dr. Shari Langemak

Dr. Shari Langemak

Fellow

John Dundas

John Dundas

Fellow

Paul Simms

Paul Simms

Advisor

Keerthika Subramanian

Keerthika Subramanian

Fellow

Don Codling

Don Codling

Fellow

Nathana Sharma

Nathana Sharma

Fellow

TECHNOLOGY ADVISORY

"If we continue to develop our technology without wisdom or prudence, our servant may prove to be our executioner."

–Omar N. Bradley

Milind Kamkolkar

Milind Kamkolkar

Advisor

Tracey Zimmerman

Tracey Zimmerman

Advisor

Anish Shindore

Anish Shindore

Press and Media Relations Advisor, Europe

Paul Boudrye

Paul Boudrye

FELLOW

Stephanie Wander

Stephanie Wander

Fellow

Sameer Sood

Sameer Sood

RESEARCH SCHOLAR

Michelle Trudo

Michelle Trudo

Associated Founder: Design Excellence

Kristen Laughlin

Kristen Laughlin

Fellow

SUPPLY CHAIN PARTNERS

The underlying technology that we use to create platforms and products matter. At Hu-manity.co we have three principles on selecting technology. Our technology partners must be API first, they must lead their category with innovation spend, and they must have versions that can run on a broad array of infrastructure configurations to accommodate our diverse customers environments.

CORPORATE SUPPORT

We support the 31st Human Right.

Watch a video of our Founder and Chief Executive Officer Richie Etwaru interviewed on The 31st Human Right at the United Nations Celebration of the 70th Anniversary of The Declaration Human Rights hosted by The People Centered Internet and Constellation Research in Palo Alto California on December 10th 2018.

Watch video

MAINSTREAM COVERAGE

"The prize for pharma is the acquisition of a much richer stream of data, and the chance to build an active relationship with the patients who supply it, eliminating many of the industry’s concerns about inadvertently falling foul of privacy laws."

-Financial Times, 2019

How patients can turn their medical data into money

How patients can turn their medical data into money

The acquisition brings together Hu-manity.co’s blockchain-backed consent and authorization managem...

Financial Times April 29, 2019
Who owns your medical data? Most likely not you.

Who owns your medical data? Most likely not you.

Do you think you own your own medical data? Your hospital and doctor...

The Washington Post November 26, 2018
If Your Medical Information Becomes A Moneymaker, Could You Get A Cut?

If Your Medical Information Becomes A Moneymaker, Could You Get A Cut?

Hospitals and health plans are increasingly using the huge amount...

NPR October 16, 2018
Digital Health Heavyweight John Nosta Weighs In On Data As Property on Forbes.com

Digital Health Heavyweight John Nosta Weighs In On Data As Property on Forbes.com

Forbes.com - President at NostaLab.com, Faculty at Singularity University, and Goole Health Advisory Board Member covers the topic of inherent hum...

Forbes June 5, 2018

BUSINESS COVERAGE

“The sale of your data isn’t explicitly described in your agreement with your doctor, so from their point of view, there’s nothing for you to object to,” explains Richie Etwaru, the founder and CEO of Hu-manity.co, one of a number of emerging startups that aim to help consumers control and even sell their own health data. “But to make it worse, anonymity is increasingly not guaranteed.”

-FastCompany, 2019

Who Should Own Your Health Data?

Who Should Own Your Health Data?

How should America manage personal health data? Look to Estonia, says Eric Topol, founder and director of the...

Fortune April 5, 2019
Apple CEO Tim Cook's privacy suggestions don't go far enough: Constellation Research’s Ray Wang
FOX Business January 21, 2019
What you don’t know about your health data will make you sick

What you don’t know about your health data will make you sick

You can’t opt out of a shadowy system that’s hungry to know everything about your health—and without...

Fast Company March 26, 2019
Blockchain’s Biggest Opportunities Aren’t in Bitcoin

Blockchain’s Biggest Opportunities Aren’t in Bitcoin

In 1970, a scientist at IBM Research named Edgar F. Codd made a remarkable discovery that would truly change the world—but few people realized that at t...

Barrons March 1, 2019

TECHNOLOGY COVERAGE

"Hu-manity wants to change the way we share data by giving people legal ownership with contractual enforcement handled on the blockchain. The first foray will be with medical data, and today the company debuted the #My31 app in Google Play and the Apple App Store."

-TechCrunch, 2018

Hu-manity Taps into Blockchain Technology to Create Data Marketplace

Hu-manity Taps into Blockchain Technology to Create Data Marketplace

The beautiful thing about data and information is that it is wildly available. The sad thing is that a majority of us don't know who is using our private information…

Coinbench September 4, 2018
Hu-manity Interview, Talking Digital Life And Rights, w/ Technology News!

Hu-manity Interview, Talking Digital Life And Rights, w/ Technology News!

Inherent human data is bought, sold, and used in a global human data marketplace without being classified...

Computer America April 5, 2019
PatientSphere uses AI and blockchain to personalize treatment plans

PatientSphere uses AI and blockchain to personalize treatment plans

Artificial intelligence (AI) can — and already has — improved the health outcomes of patients around the globe. Google earlier this month achieved 99 perce.…

VentureBeat January 16, 2019
Hu-manity launches app giving consumers legal control over medical data

Hu-manity launches app giving consumers legal control over medical data

Hu-manity wants to change the way we share data by giving people legal ownership with contractual enforcement handled on the blockchain. The first...

TechCrunch September 12, 2018

HEALTHCARE COVERAGE

The app, My31, does not store any personal or medical data, but simply offers a record of a user’s property ownership and data-sharing preferences. The data itself will remain where it is currently stored, such as in electronic medical records or in research databases.

-FierceBiotech, 2018

Hu-manity.co eyes next-gen human rights: 'Data will be the currency of the future

Hu-manity.co eyes next-gen human rights: 'Data will be the currency of the future

Change is coming to the way government and healthcare providers treat personal medical data. In early January 2019, legislators in Oregon introduced Senate Bill…

Outsourcing Pharma April 29, 2019
A Belmont Report for Health Data

A Belmont Report for Health Data

Just as indignities common in human-subjects research led to the articulation of ethical principles in the Belmont Report 40 years ago, contemporary concerns about…

The New England Journal of Medicine May 3, 2019
What Oregon’s Move to Redefine Data Privacy Means for PHI

What Oregon’s Move to Redefine Data Privacy Means for PHI

Change is coming to the way government and healthcare providers treat personal medical data. In early January 2019, legislators in Oregon introduced Senate Bill…

Health Tech April 29, 2019
RWE: The Missing Link

RWE: The Missing Link

Pharma’s investment in real-world evidence shows no sign of drying up. “Very few pharma companies today are not investing in RWE initiatives, especially if they…

eyeforpharma February 12, 2019

MISCELLANEOUS COVERAGE

"According to co-founder Michael DePalma, Hu-manity.co was founded on the belief that people should own their data, particularly their medical data, as personal property. “People feel that information about their health is most personal of all,” he added. “It is consistently ranked as the information people feel is most sensitive. So in that sense, we’re all involved in healthcare and privacy issues.”

-Washington Examiner, 2019

Hu-manity.co helps people control — and monetize — their own info

Hu-manity.co helps people control — and monetize — their own info

The acquisition brings together Hu-manity.co’s blockchain-backed consent and authorization managem...

ROI NJ April 29, 2019
Blockchain gets a boost in the business world – but many remain dubious

Blockchain gets a boost in the business world – but many remain dubious

Decentralised blockchains could completely alter the landscape of trust in business. The technology is slowly gaining momentum, but many people rema...

Enterprise Management 360 July 24, 2018
Companies are Selling Your Medical Info. So Why Shouldn’t You Claim A Share?

Companies are Selling Your Medical Info. So Why Shouldn’t You Claim A Share?

The selling of medical records is big business. According to some estimates, the sale of patients’ information is a $67 billion industry, of which the...

Princeton Info September 24, 2018
How Personal Data Ownership Can Solve A Privacy Problem

How Personal Data Ownership Can Solve A Privacy Problem

In any industrialized society, including the United States, one of the things that we take for granted is our common agreement about property rights...

GritDaily February 15, 2019

PRESS RELEASES

“The track and trace of consent and authorization model that Hu-manity.co has brought to market has been what is missing in healthcare data from the inception. The simple idea that we should put the consumer (the patient) into the center of the healthcare data supply chain with ownership rights literally at their fingertips is both powerful, and timely.”

Matt Sinderbrand, Chief Product Officer, Hu-manity.co, 2019

Quantified Self Pioneer Larry Smarr Joins Hu-manity.co as Senior Advisor

The acquisition brings together Hu-manity.co’s blockchain-backed consent and authorization managem...

Editor May 8, 2019

Hu-manity.co Acquires Betterpath Health Empowering Patients with Access to Healthcare’s Dark Data

The acquisition brings together Hu-manity.co’s blockchain-backed consent and authorization managem...

Editor April 29, 2019

Patient Data Ownership and Data Property Rights Emerge as a Theme at Leading Pharma Executive Event

Multiple healthcare professionals discuss data ownership at a leading pharmaceutical event...

Editor March 14, 2019

Hu-manity.co Announces Data-Focused Magna Carta as a Guide for Corporations to Be on the Right Side of History

CEO to discuss during live event on the same stage as founders of the internet and representatives fr...

Editor December 9, 2018

TransPerfect Donates Services to Support Hu-manity.co’s Efforts to Establish 31st Human Right

Company Globalizes Messaging About Hu-manity.co’s Work to Secure Personal Data Property Ownership f...

Editor December 18, 2018

PulsePoint and Hu-manity.co Partner on Consumer Data Ownership Movement for Healthcare Advertising

Partnership advances new open standard for data ownership NEW YORK, NEW YORK – Oct 31...

Editor October 31, 2018

eyeforpharma Chair to Join Hu-manity.co Advisory Board

Paul Simms to help drive pharma’s adoption of the #My31 Movement to make personal data personal property. PRINCETON, NEW JERSEY...

Editor September 17, 2018

Hu-manity.co Taps Pfizer Executive to be Pharma’s First Industry Transformation Officer

Pharma Insider Dan Karlin to activate the win-win of personal data property ownership for the Pharmaceutical Industry   Princeton, New…

Editor September 6, 2018

WHITE PAPERS

Our data is becoming more valuable every day, and we are seeing the just beginning. From our medical records being used for pharmaceutical research to our travel data being used to plan ideal vacations, the data that we create is powering the digital economy. And it’s time the sources of that valuable data — ordinary people — shared in the profits.

ON STAGE & ON SCREEN

See the Hu-manity.co team on stage and on screen across the world. We have presented the concepts of the 31st Human Right, Fair Trade Data, and Consent as a Service to over 50,000 individuals at over two dozen events globally.

Audiences include industry, policy makers, consumers, and academia.

LEARN MORE ABOUT HUMAN DATA

Corporations are arriving at the vivid realization that deepening consumer engagement at scale will cross over dark ethical and regulatory boundaries in the eyes of the public and policy makers globally.

The absence of a direct and appropriately consented relationship with consumers when coupled with further use of data and improvements in algorithms will trigger the Cambridge Analytica of every industry.

The first step of the process is education on the problem, the risk and opportunities, and various solutions.

Geospatial Data

Geospatial Data

Media Consumption Habits

Media Consumption Habits

Consumer Behavior

Consumer Behavior

Electronic Medical History

Electronic Medical History

INHERENT DATA

Inherent human data is not just our browser & social media data. It goes way beyond Facebook.

Inherent human datasets also includes our geospatial data, driver and vehicle history, consumer spending habits, medical history, travel, dining, and recreational habits.One individual’s electronic medical history can be sold for hundreds of dollars to multiple buyers, in different markets across the world multiple times per year.

The Difference Between Data Privacy, Data Access and Data Property Ownership

The Difference Between Data Privacy, Data Access and Data Property Ownership

In the debate over how to secure everyone's data, there is constant...

Video March 21, 2019
Interview Michael DePalma/Hu-Manity - Digital Health Live Studio

Interview Michael DePalma/Hu-Manity - Digital Health Live Studio

In this high-energy video, Richie Etwaru, Founder and CEO of Hu-mani...

Video March 21, 2019
A Title of Ownership for Your Data (explained)

A Title of Ownership for Your Data (explained)

You have a title for car, your house or even your boat; so why not your dat...

Video March 22, 2019
What Hu-manity Can Give Humanity

What Hu-manity Can Give Humanity

"I think we all want to leave this planet showing that we put a mark somew...

Video March 22, 2019

HIGHLIGHT REEL

Hu-manity.co Demos Live to 500+ Pharma Executives

Richie Etwaru, Founder and CEO of Hu-manity.co, explains how data property ownership will benefit all sides of the pharmaceutical and healthcare industries. At the CNS Summit in Boca Raton, Florida Hu-manity.co spoke in front of a live audience with executives from Pfizer, Novartis, Johnson & Johnson, Merck, Roche, Takeda, Otsuka and more.

Watch video

LEARN EVEN MORE ABOUT HUMAN DATA

Reaching a Critical Mass in the #My31 Movement

Reaching a Critical Mass in the #My31 Movement

Once enough people sign up and claim their 31st Human Right, we will be abl...

Video March 21, 2019
What the #My31 Movement Stands For

What the #My31 Movement Stands For

The idea for the #My31 Movement began as a realization by the founde...

Video March 21, 2019
We are Hu-manity.co | #My31

We are Hu-manity.co | #My31

Hu-manity.co is the world’s first and only organization developing human...

Video March 21, 2019
Why the 31st Human Right

Why the 31st Human Right

This short animation explains the history of 30 Human Rights the UN...

Video March 21, 2019
Why Claim Your 31st Human Right?

Why Claim Your 31st Human Right?

In this video the founder, President and Chief Operating Officer...

Video March 22, 2019
The Data Market is Growing Exponentially

The Data Market is Growing Exponentially

Right now the data market is estimated to be worth somewhere between $15...

Video March 22, 2019
Using Your Data to Control Your Future

Using Your Data to Control Your Future

A quote from Hu-manity.co Advisory Board member Tracey Zimmerman...

Video March 22, 2019
It's Time for 23andMe to Meet 31andMe

It's Time for 23andMe to Meet 31andMe

The world should be outraged by the 23andMe announced partnership wi...

Video March 21, 2019
How Change Happens to Make Your Data Your Property

How Change Happens to Make Your Data Your Property

The idea of owning your data as property and then being able to...

Video March 21, 2019
Data Comes From People #My31

Data Comes From People #My31

In this video, Michael DePalma (Founder, President and COO of Hu...

Video March 22, 2019