What is the mission of Hu-manity.co?
Hu-manity.co exists to empower individuals to own their data as their property and then we fight for and provide the tools for people to receive fair market value for their data as an asset. The data property movement is on the side of fairness and of regular people. It allows people to have a seat at the table so they can control and make money off of what is rightfully theirs. At the same time, it provides tremendous advantages for businesses to an adult relationship with people where both the individual and the corporation can thrive in a new data economy.
Why the 31st Human Right?
In 1948, the United Nations enacted the Universal Declaration of Human Rights. There were 30 human rights listed in this document. These human rights are still very relevant to this day. These rights look at the mistakes of the past to make sure they would never happen again. What we are proposing is a new human right which looks at the challenges specifically faced in a digital age. The 31stHuman Right is:
“Everyone has the right to legal ownership of their inherent human data as property.”
What is the #My31 movement?
This is the movement to champion the 31stHuman Right, to make people’s data their personal property. A digital movement deserves an appropriate digital tool as the rallying cry. No longer will you have to grab signs and a megaphone, you can join this movement from your couch with the #My31 app (iPhone and Android).
How does Hu-manity.co make money?
The company was founded on a simple principle: We have to help a lot of people first and continue to help them, in order to be successful.
Once enough people have joined the movement, and we are able to set up the pathways for people to get paid for their data, we will be charging a small fee to the buyers of the data in order to give them access to these higher quality data sets.
What is the difference between Hu-manity.org, Hu-manity.science and Hu-manity.co?
Most companies are set up to make money first. So, it is not until later in a company’s growth before opening a research division and/or a foundation.
Since our goal is to change the world and not simply to make a lot of money, we created a research arm and a foundation from the beginning.
Hu-manty.science is responsible for researching the convergence of social good and technological innovation. To find new ways, where technology can solve real world problems.
Hu-manity.org is borderless and non-political and is responsible for championing choice and continuous consent to ensure people have a say as to how their data is used.
Hu-manity.co is the commercial part of the venture that is responsible for the creation and maintenance of the #My31 app.
Are you a non-profit?
While we do have two B-corps (Hu-manity.science and Hu-manity.org) to support the mission, Hu-manity.co is a for profit company. However, we cannot make any money until we have helped a lot of people first. This is a fundamental component of our business model that we are very proud of, to do good before we can make any profit.
Who are your partners?
IBM– we have built our technology on IBM technology and are working together to make sure everyone’s data is respected as personal property.
Orb Health– the first electronic medical record company to sign up for supporting the idea that people should own their data as property. Once we have reached a critical mass of users, they will be offering explicitly consented data to pharmaceutical companies and researchers.
Imcon International– the makers of an internet backpack with the goal of connecting the nearly 4 billion people on the planet who do not have internet access. Everyone who is born into the internet for the first time and connected using the backpack, will automatically have their 31stHuman Right intact. In the Republic of Liberia alone, we estimate this would increase the GDP by 3%.
PulsePoint– a leader in programmatic advertising in the healthcare space. This partnership is our opening into the world of advertising data. Imagine a premium network where everyone who is on a network has chosen what information they would like to receive ads for and what information they are willing to share about themselves. Once mainstream… no longer will you be stalked by ads on the internet. You will only be presented with ads you have chosen.
Data Privacy vs. Data as Property
Property laws are enforceable and powerful. The notion of data privacy is nebulous and difficult to enforce. If we asked you if the company you work for cares about privacy, the vast majority of you would say, “Yes. It does.” However, if we asked you if you feel your personal privacy is being respected when it comes to your data, most people we talk with agree… it is not.
Privacy is a myth we tell ourselves. It is easy for governments and companies to check a box and say they care about privacy but what does that accomplish? It is very difficult to enforce privacy laws. There is a ton of disagreement over how these laws should be established and what should be emphasized. The results tend to be unfair to the individual, corporations, government and often all of the above.
Property rights on the other hand are well established globally. Clear laws have been established over property ownership so there is no need to re-think the legal corridors. Property ownership has extended to intellectual property. Why shouldn’t the same logic and laws apply to data ownership? There is no need to reinvent the “legal wheel” so to speak. Use the laws already in place rather than starting from scratch and crafting brand new “data privacy” legislation.
When you own something, you control how it is used. You can lease it if you want, you can donate it or you can simply keep it. That is what we mean when we say, “Property is powerful.”
Is Hu-manity.co against data and trying to limit the use of data?
Absolutely not. We are pro-data. Data makes the world go round. It is truly the currency of the future. This fact is exactly why we as humans should own the data we create and allow it to flow freely while laws should be established which respect our individual choices around how we would like our data used.
What is inherent human data?
It is the information that exists before someone measures it or records it. For example, you still drove a certain path even if no app tracked and recorded your movement. In order for a machine to determine your heart rate, your heart still has to beat. You made certain purchases before the credit reporting companies aggregated your purchases. Inherent human data is the information we create as humans prior to information being measured or recorded.
What is the size of the data marketplace?
Right now, the data marketpalce is estimated at somewhere between $150-200B annually. The healthcare data marketplace alone is estimated at $67B annually. Currently, people have no control of how, what or if their data is used and no way of having a seat at the table.
What is the exponential growth of data?
With all of the connected homes (think Amazon Echo and Google Home), IoT, facial recognition and genetic testing being done, the future value of data is growing exponentially. We envision a day when data will become part of a person’s estate and net worth, providing for the future of their families. We just need to secure ownership for all people now, before the market becomes too large and we lose the ability to take back what is ours.
Is Hu-manity.co holding, storing or collecting your data medical/health data?
No. The data will remain with whomever is storing, collecting and selling it now. We represent the title to your data, but not the data itself. The title is connected to the choices a person makes as to how they would like their data used. We then take your choices and fight for them to be respected across the data marketplace.
Is there a benefit to explicitly consented data for business/companies?
Yes. A significant benefit. Explicitly consent data at scale is something the world has never been offered. Because it puts the choice in the hands of the individual. The individual for the first time ever has a financial incentive to offer their data for use. This also provides a two-way relationship between an individual and a company. The more data an individual provides, the more that person can financially benefit from the relationship and the more information a company can receive for research, marketing, etc.
This has the potential of speeding research and would lead to more effective research by providing higher quality and verifiable data while simultaneously respecting the individual who owns the data. So, for example, the individual and pharmaceutical industry can both thrive. These better data sets can actually help drive better and more efficient research, potentially bringing more effective medicines to the market. While simultaneously respecting people’s right to use their data as they see fit.
What do you mean by a digital title to my data?
It works just like a title you can receive for your car or your house. This is a title of ownership for your DIGITALdata. Means you own your data as your property.
What does fair-trade data mean?
This is like fair-trade coffee but with data. Meaning, there was a fair exchange of data by consenting parties with transparent protocols and values. In other words, everyone has received fair market value for their part of exchange and no one was stolen from or taken advantage of.
Why start with healthcare/medical data?
Healthcare/medical data is one of the largest datasets, one of most valuable and perhaps the most personal. And, most people don’t even realize their data is being de-identified and then sold without their explicit consent often times for large profits.
Consumers benefit because they can take control of their most sensitive information, while getting better access to (and delivery of) life critical solutions from providers and are not cut of the deal as the data brokers are already selling patient data sets from lab work to prescriptions to procedures and beyond
Pharmaceutical companies and researchers benefit by getting higher quality data to help design more meaningful and impactful solutions which could lead to better outcomes and even cures.
Furthermore, if we launched the movement on all datasets at once (e.g. consumer spending habits, geospatial data, driver and vehicle information, energy consumption, browsing history, etc) it could be too much of a shift of thinking and it could destabilize the flow of data. That is not our goal. We want data to continue flowing smoothly and give society time to adapt and embrace this new property centric and inclusive approach to data.
The #My31 app
How the #My31 app works
The app is a tool that powers a movement for people to own their data as property. Anyone who claims their data as their property on our app (which is free) will get a digital title of ownership for their data (like a title for a car or house). Then, our blockchain powered technology tracks and traces an individual’s data as it moves through existing marketplaces. This process provides security, trust and transparency.
On the app, users can manage how, where and if they would like their data used. As certain movement goals are reached, further functionalities will be unlocked. To learn more about the movement goals click here
Does it cost anything to use the #My31 app?
There is no cost to download the app or claim your 31stHuman Right or eventually receive compensation for your data. This is the service we provide.
Will I get paid right away?
No. In order to get paid, we have to reach a critical mass of user to join the #My31 movement. Then, we will be able to fight for the individual’s choices to be respected as to how you would like your data used. At 100,000 users we will begin the notification of the healthcare industry. For more information about the movement goals go here: https://hu-manity.co/my31app/
All of this is the reason to encourage as many people as you can to join the movement.
Blockchain is what powers our system to function providing both trust and transparency that the person is a real person as well as the ability to track and trace if a person’s data is used by anyone in the new data economy.
Another way of putting it… Our IBM Blockchain backed trust and consent ledger provides immutable evidence that the digital title and the subsequent choices about how people would like their data to be used can be traced back to a real person and those choices were made by that person.
As a result, there is no need for a government or company to oversee these transactions – that is why it is a decentralized technology. Blockchain puts the power in the hands of the people.